This grant is for setting up a Data Coordination and Outreach Center for a program that focuses on understanding the genetics of rare diseases. The center will manage and share data and resources with the research community.
Who it's for: This grant is for organizations and individuals interested in coordinating data and outreach for a rare disease genetics research program. Eligible applicants include various types of educational institutions, government bodies, nonprofits, for-profit organizations, and individuals.
More details
Likely Disqualifiers
- Proposing a clinical trial
- Lack of experience in data coordination
- Inability to manage outreach activities
- Non-compliance with NIH policies
- Failure to demonstrate capacity for data sharing
What You May Need
- Detailed project proposal
- Budget plan
- Organizational capability statement
- Data management plan
- Letters of support or collaboration
- Proof of eligibility (e.g., 501(c)(3) status for nonprofits)
- NIH biosketches for key personnel
- Compliance with NIH data sharing policies
- Registration with SAM.gov
- Registration with Grants.gov
Cautions
- Ensure no clinical trials are proposed
- Adhere to NIH data sharing policies
- Be prepared for extensive coordination responsibilities
- Carefully manage budget to fit within the award range
Generated from official source details for readability
Eligibility
Eligible Applicant Types
Additional Criteria
Eligible applicants include for-profit organizations, public and state institutions of higher education, private institutions of higher education, special district governments, nonprofits with or without 501(c)(3) status, state governments, independent school districts, city or township governments, individuals, federally recognized Indian tribal governments, other Native American tribal organizations, and county governments. Essentially, a wide range of entities and individuals with the capability to manage data coordination and outreach for a research program are eligible.
Overview
This grant is for organizations and individuals interested in coordinating data and outreach for a rare disease genetics research program. Eligible applicants include various types of educational institutions, government bodies, nonprofits, for-profit organizations, and individuals.
Likely Disqualifiers
- Proposing a clinical trial
- Lack of experience in data coordination
- Inability to manage outreach activities
- Non-compliance with NIH policies
- Failure to demonstrate capacity for data sharing
Use of Funds
Funds can be used to establish and operate a data coordination and outreach center, including staff salaries, data management systems, outreach activities, and other related expenses.
Total Program Funding
$2,000,000
Expected Awards
1
Cost Sharing
Not Required
Important Dates
- Posted
- Jun 18, 2026
- Deadline
- Oct 30, 2026(133 days)
- Archive Date
- Dec 29, 2026
Application Checklist
- Register with SAM.gov and Grants.gov
- Prepare a comprehensive project proposal
- Develop a detailed budget plan
- Gather letters of support or collaboration
- Draft NIH biosketches for key personnel
- Ensure compliance with NIH data sharing policies
- Submit application by the deadline